As a mother, I will never give up on my child. As a mother of a child who has autism, I will never give up hope.
I look into his eyes and I see all the potential that he has to offer to this beautiful world and I just know that one day the world can see what I see.

Follow my blog as I share my life and my experiences as a person who loves someone with autism.

Thursday, March 31, 2011

Autism Treatment

I’m going to start with a little back story on how we got to where we are today with BubblesMakeHimSmile.com.

A little over a year ago I was listening to The Kid Carson Show on Vancouver’s #1 Hit Music Station, The Beat 94.5, and they had a guest on the show named Dr. Tasreen Alibhai, a naturopathic doctor, talking about the 10 things you need to know to start as you start the new year and tackle New Years resolutions. Her concepts sounded so motivating and I wanted to know more about her practice so I went to her website, Vitalia Health Care, and the very first thing that caught my eye on her website were the words: Autism Treatment.

Vitalia Health Care

I knew there wasn’t a cure for autism, but treatable? I never heard of anyone using the words ‘Autism Treatment’ before as Bryce’s diagnosis was always labeled as ‘manageable’. I was intrigued.

That was when we discovered the Defeat Autism Now! (DAN) protocols and naturopathic therapies to improve the various functions that affect autism with bio-medical approaches including diet and nutrition, detoxification, and Hyperbaric Oxygen Therapy (HBOT).

At Vitalia Health Care, we know that autism can be treated. We provide a full range of bio-medical services that can help heal the underlying problems so your child can have a fuller, healthier life.

We made an appointment with Dr. Alibhai to learn more about this type of therapy for our son. During our consultation she answered all of our questions and gave us a ton of information about the bio-medical approach. She also recommended to run a series of tests, to screen for food sensitivities, and to have 60 sessions of Hyperbaric Oxygen Therapy (HBOT). With not much success in traditional therapies, this was something that we were definitely wanting to try, but the costs of the HBOT was more than we could ever afford.

And that is how our website, BubblesMakeHimSmile.com, came about.

We created this blog on March 16th, 2010 to generate more autism awareness, to share our lives and experiences as people who love someone with autism, and to raise money for the Bubbles Make Him Smile Therapy Fund for 60 HBOT sessions. As of the date this blog was posted, we were at $6,118.

Dr. Alibhai contacted us a couple days ago, almost a year to the day of our consultation with her. She told us she was contacted by Jasper Steed from Autism Smiles LLC who advocated our cause, and discussed the work that we have done over the past year raising funds and promoting autism acceptance and awareness and asked if there was anything that she could do to help us out. She asked if we could come to her office for a complimentary consultation with Dr. Jordan Atkinson, follow up on Bryce’s health and progress, and start the HBOT sessions.

During our appointment we saw Dr. Alibhai and she announced that the Canadian Hyperbaric Institute would like to donate $2,016 worth of Hyperbaric Oxygen Therapy (equivalent to 15 sessions) for Bryce. This would reduce our original goal of $7,560 down to only needing $6048 which allowed us to start the therapy.

We are extremely excited to announce that Bryce will be starting Hyperbaric Oxygen Therapy on Saturday, April 16th, 2011!

We’d like to thank everyone who donated to the Bubbles Make Him Smile Therapy Fund to help raise money for Bryce’s Hyperbaric Oxygen Therapy sessions. We’d also like to thank the generous donation from Dr. Tasreen Alibhai of the Canadian Hyperbaric Institute.

We’re finally doing it!

We will be documenting this whole HBOT experience and sharing pictures, videos, and reporting everything we can on our blog, Facebook, and Twitter.

Thanks for reading,
Bryce, Tanaya, and Daniel

To learn more about Hyperbaric Oxygen Therapy (HBOT) to treat autism, please visit Vitalia Health Care.

Monday, March 21, 2011

Together Everyone Achieves More

The other day we were asked by someone on Twitter: What services do individuals with autism need the most?

We replied: A great support team of any kind is #1 priority.

Support Team twitter post

I guess Gary Busey from Celebrity Apprentice said it best by creating an acronym for the word ‘team’: Together Everyone Achieves More.

This academy award nominee is right. By having a team that works together, listens to your needs, concerns, answers your questions and being supportive, you can achieve so much more.

A support team is a generic yet personalized team that aims to provide efficient and effective support for an individual or group. Depending on the circumstances, your goals, your needs, a support team can consistent of, but not limited to:

  • Friends and family
  • Pediatricians or General Practitioners
  • Naturopathic Practitioners
  • Dietitians
  • Special Educational Assistants
  • Behavioural Consultants
  • Behavioural Interventionists
  • Speech and Language Pathologists
  • Occupational Therapists

I’ve said it before, and I will say it again. If someone is not on the same page as you, then it’s time to find someone who knows how to read. You are your child’s biggest advocate, and always want what is best for them so it is very important that the people that you are working with have the same goals and determination as you do. You all need to be on the same page.

This isn’t always easy, but once you create a great support team for you and your child, you will achieve more.

Choosing a professional to work with your child requires parents to gain enough information to allow them to make informed choices. Chapter 3: “Developing a Treatment Team for a Child with Autism Spectrum Disorder”, from ACT's Autism Manual for BC can help you select the right people to work with you and your child.

Thanks for reading, Tanaya

Saturday, March 19, 2011

Selecting a Professional

How to Assess the Qualifications of Professionals
Tips for Parents by Dr. David Batstone

Talking to Professionals about their Qualifications

When you decide to use the services of a professional, you want to have confidence that the person is qualified and experienced and able to meet the particular needs of your family or child. Your first meeting with the professional is a time to get acquainted, to talk about your child’s needs, and to find out what the professional can do to help. You can use this time to ask questions about the person’s background and experience in working with children.

If you have any doubts, it is wise to ask specific questions until you are satisfied that the person is appropriately qualified to help you. Professionals should know their limits as well as their strengths and should gladly refer you to someone else if their skills are not a good match for your needs.

Although this process is usually quite straightforward, it is unfortunate that there are a few people who present themselves to the public as professionals but who are not in fact qualified or appropriately trained. This information is intended to help you in recognizing and understanding professional qualifications and to guide you in finding professionals with appropriate skills and experience. It will also help you to recognize when a person may be unqualified or misrepresenting themselves for personal gain.

Why do people list all those letters after their names? Is this supposed to impress me?

The purpose of using titles, academic degrees, and specialty designations is to communicate accurate information to the consumer or other professionals about the person’s education and training and their legally recognized professional role.

Unfortunately, some people do use titles and abbreviations in an effort to impress or even to mislead consumers about their qualifications. If all those letters after someone’s name look impressive but if you don’t know what they mean, you should ask. A professional will be glad to explain. If the person is defensive, it’s time to start asking a lot more questions.

What do I need to know about academic degrees?

Most people recognize common university degrees like B.A. (Bachelor of Arts),

B.Ed. (Bachelor of Education), M.Sc. (Master of Science), M.D. (Doctor of Medicine) or Ph.D. (Doctor of Philosophy). A Bachelor’s degree normally requires four years of study, a Master’s an additional one or two years, and a Ph.D. about three to five years beyond the Master’s.

Sometimes you will encounter a degree that is less familiar, such as Psy.D. for a Doctor of Psychology, or D.Litt. et Phil. for the European equivalent of a Ph.D. The training is a little different for these various degrees, so ask about them if you are interested.

Should a professional list all of their degrees?

People with more than one degree usually list only their most advanced one. If they have a B.A. and an M.A., for example, they will usually list only the M.A. after their name, but either way is acceptable.

Professionals should not list degrees that are not relevant to their professional practice without making it clear that the degree is in another area. For example, if an Occupational Therapist has a Bachelor’s degree in Occupational Therapy and also a Master’s Degree in History, it would be misleading to use "Mary Jones, M.A." in her professional practice since this gives the false impression that she has been trained at the Master’s level in Occupational Therapy. In this situation, she should list her degrees as Mary Jones, B.Sc., or Mary Jones B.Sc. (O.T.), M.A. (History).

Can I trust that a master’s or doctoral degree means that the person is well educated and professionally trained?

Not always! Universities do vary in quality, and a person may be trained in an area that is not relevant to your needs. Unscrupulous people sometimes use phony degrees to create the impression that they are well-trained professionals when they are not. If you are uncertain about someone, ask where they received their degree and what sort of training they received.

It is important to make a distinction between legitimate universities and “degree mills” or “diploma mill”. Degree mills provide degrees without providing an education. They may give credit for “life experience” or submitting a few essays, but they have few if any formal course requirements and few if any qualified faculty. Some of these so-called "universities" will provide a “BA” or “MA” for just a fee and a few months of enrolment. Degree mills provide a completely inadequate education. Some provide virtually no education at all.

“Diploma mills” are outright frauds that print counterfeit diplomas for legitimate universities. You can buy a Harvard diploma for the right price and the risk of a fraud conviction! You are quite unlikely to encounter someone with a counterfeit diploma, but it does happen and it has happened in B.C.

Legitimate universities operate under a provincial or state charter or they are recognized by a national or regional accrediting agency. Be careful when asking about accreditation. Some phony universities are accredited by phony accrediting agencies! The Council for Higher Education Accreditation is a good source of information about universities and accreditation in the United States. The Registrar’s office at your local university can usually tell you whether they would recognize a degree or course credits from a particular institution. To read more about diploma mills click here.

What else should I watch for?

Occasionally people will claim degrees that they have not quite earned. For example, a person who has completed all the course requirements for a Master of Arts but has not completed the required thesis might improperly list M.A. (ABT) after their name, meaning M.A. (All But Thesis). You might also see Ph.D. (ABD) for “All But Dissertation”.

This is unethical because it creates the false impression that the person has been awarded a degree when they have not. Since most people will not know what ABT or ABD really means, they might assume that the person has an M. A. in “Applied Behavior Therapy” or something similar. People who use these abbreviations may be deliberately misleading you, but sometimes they are just poorly trained in ethics and don’t realize that it is improper.

Do I have to go to the trouble of checking out every person’s degree?

No. If a person is registered with a professional college such as the Royal College of Physicians and Surgeons, the College of Physical Therapists of B C., the College of Dietitians of B. C., the College of Psychologists of B.C., etc. then the College will have evaluated the person’s educational credentials before allowing them to be registered. The Colleges also put candidates for registration through an examination process to assess their professional knowledge and skills. Colleges also require a period of supervised practice before the person can be registered.

What is a professional College and how do I know if a person is registered?

In British Columbia, twenty-three different health professions are regulated under the Health Professions Act. Each profession has a "College" that sets educational and training standards and standards of practice, evaluates applicants for registration, and is responsible for enforcing a Code of Ethics. People must be registered to practice these professions. Consumers can file a complaint with the relevant College if they believe a registered health professional is practicing unethically or incompetently. If a person is registered with a College, you can be confident about their educational credentials.

A health care professional should indicate that she is registered on any promotional materials, or on her business card or correspondence. She should be able to provide you with her registration number. If in doubt, you can call the relevant College or visit the College website and you can quickly confirm whether the person is registered.

Professions that are primarily educational rather than health-related are not included under the Health Professions Act. The majority of speech language pathologists work in the school systems, for example, and so they are not currently included in the Health Professions Act.

What about all those other letters after the person’s degree?

Some abbreviations refer to registration with a professional College (for example, R. Psych. for Registered Psychologist). Other letters show that a person is a recognized specialist within their profession. For example, a physician with FRCPC after their name is a Fellow of the Royal College of Physicians of Canada and has advanced training in a specialized area of medicine such as Pediatrics, Neurology, Psychiatry, etc. In Psychology, ABPP shows that the psychologist has met the standards of the American Board of Professional Psychology in a specialty area such as Clinical Neuropsychology, Behavioral Psychology, School Psychology, etc.

Other abbreviations may indicate that a professional has met some nationally recognized standard of competence in their field of practice. For example, Speech Language Pathologists sometimes use CCC-SLP to indicate that they have qualified for a Certificate of Clinical Competence that is recognized throughout North America.

Generally speaking, professionals should not list certificates and diplomas in specific techniques after their name. These abbreviations usually do not mean much to the consumer and may only indicate that the person has passed a course or taken a few workshops. These qualifications may be relevant, but for the sake of clarity they should be spelled out in a short statement about the person’s background and services rather than listed as abbreviations after their name.

If you see a lot of letters that mean nothing to you, ask questions. Be curious rather than impressed. Keep in mind that an unqualified person could have a certificate in a completely discredited or potentially harmful practice.

What is a Board Certified Behavior Analyst?

The letters BCBA mean that the person is a Board Certified Behavior Analyst. This means that they have met the standards of the Behavior Analysis Certification Board, which requires in-depth training in Applied Behavior Analysis (ABA) at the Masters or doctoral level, supervised experience in ABA, and passing of an extensive written exam. This is quite a high standard and means that the person is well trained in ABA theory and methods. It does not necessarily mean that the person is trained and experienced in autism treatment, however, since Applied Behaviour Analysis is a very broad field. Note that Board Certification in Behavior Analysis is entirely voluntary for professionals, so a person can be competent in this field and can practice this specialty without a BCBA designation. The letters BCABA refer to a Board Certified Associate Behavior Analyst. These are specialists in ABA trained at the Bachelor’s degree level and they are not authorized to practice as independent consultants designing treatment programs for children.

What are the warning signs that I really need to check someone out more carefully?

Be suspicious of anyone who presents themselves as a professional but does not clearly identify what their profession is. Professionals should be accountable to a regulatory body that sets and enforces standards of practice. If a person claims competence in a great variety of different things, they may not be truly competent in any of them. You should also be cautious if one method is offered as the treatment for a great many different conditions. There are no "cure-alls".

Professionals do not offer guarantees nor should they promise a particular success rate. They should not use testimonials from “satisfied customers” to convince you to use their services, but might provide names of people they have worked with as references. They should be able to refer you to research articles about their methods, and you should ask for this if their methods seem unconventional. Be suspicious of any degree that seems unusual or unfamiliar. If you’ve never heard of a “M.A. in Esoteric Studies” or a “Ph.D. in Integrative Physiology” then find out more about it. Where was the degree earned, what did they study, how much and what kind of training did they receive? Use the Internet to check out the institution where the person was trained. The bogus ones are usually not hard to spot.

Be concerned if the person cannot explain what they do in understandable terms. If they give you a lot of scientific-sounding talk that makes no sense, there may be neither sense nor science in their methods. Are you getting an explanation or a sales pitch? If you are not satisfied with an explanation, ask for written information then do an Internet search or ask another professional for their opinion about the person’s methods.

Okay, so the person has checked out as a registered professional. How do I know he or she has the skills and experience that I need?

Do your homework in advance by finding out as much as you can about autism treatment methods by reading, using the internet, and talking to professionals and other parents. A professional will normally begin his or her relationship with you by asking about your needs (or the needs of your child) and then suggesting what they can do to help you. Feel free to ask questions about their methods or approach. If you have heard about a program or treatment method that you think may be appropriate for your child, ask their opinion about it and also about their training and experience with that approach.

A professional should be willing to respond to your questions in as much detail as you wish, so ask about their years of experience or the number of children they have worked with who have needs similar to yours. Sometime it is helpful to ask what a typical assessment or therapy session would look like. If you have any doubts, ask other families or other professionals for their opinion about the person’s reputation and abilities. A professional should be willing to refer you to another specialist if they do not have the skills needed for your particular situation or if you are not satisfied with the services you receive.

While this information is mostly relevant to British Columbia, Canadian residents, the message can be taken into account for any location.

Wednesday, March 16, 2011

A year ago today

A year ago today, we created BubblesMakeHimSmile.com to share our lives and experiences as people who love someone with autism. We wanted to generate more autism awareness and share our knowledge in hopes that it would help at least one person.

BubblesMakeHimSmile.com StatCounter views

As of today, we have posted 284 blogs. Our website has generated over 11,000 views! A little over 400 people ‘Like’ us on Facebook and we have 134 followers and are on 17 lists on Twitter!

Those may just be numbers to most, but we are just extremely taken back on how many lives we have touched, how many people we may have helped in some small way, and all together very appreciative of all the support we have had throughout this year.

We’d like to thank you all!

In honour of a year of blogging, we’d like to share our personal favourite blog post entry and list the top 10 of our most popular blogs based on your views.

“I will not let Autism define him” -A father’s point of view - our personal favourite blog post entry

#10 Untitled Post – a quote that almost every parent of a child with autism can relate to

#9 Autism Quotes and Words to Live By – our Facebook friends share their advice

#8 Bubbles Make Him Smile 100th Blog Post Entry – unveiling some of our promotional items and celebrating our 100th post

#7 Win a Nintendo DSi XL – an amazing contest we had in November 2010

#6 Apps for Autism – talking about great apps for autism

#5 Everybody Poops! – we share our personal toileting experiences and give advice

#4 Assessment of Basic Language and Learning Skills (ABLLS) – discussing ABLLS

#3 Autism Creations – an interview with the creator of Autism Creations

#2 Snappy answers to annoying comments about autism – the title says it all

#1 This ain’t no fairytale – ever notice how the media softens up the reality of everything about autism?

What an amazing year it has been!

If you have any questions, comments, or concerns please feel free to contact us or join us on our Facebook page.

Thank you again,
Bryce, Tanaya, and Daniel

Sunday, March 13, 2011

Winning

We were invited to a St. Patrick’s dance at George Preston Arena in Langley, British Columbia, Canada.

We set up a table and sold raffle tickets for a brand new Xbox 360 and all proceeds benefited the Bubbles Make Him Smile Therapy Fund. They also sold 50/50 tickets during the night and half of those proceeds went to our cause as well. First we drew the winner of the 50/50 draw.

The person who won the 50/50 draw generously donated her portion of the winnings to the Bubbles Make Him Smile Therapy Fund. Thank you so much!

Then we drew the winner for the Xbox 360 raffle and it was the same person who won the 50/50 raffle! Congratulations and we hope your grandchildren enjoy the game console! We love our Xbox 360!

A huge thanks to our friend Gary for coming and helping me with the event as my wife was unable to attend.

The night was full of great music, generous hearts, and a lot of people in green. We’d like to thank everyone who purchased raffle tickets in support of the Bubbles Make Him Smile Therapy Fund. Thanks to your generousity, we raised $305.00! We really appreciate it!

A special thanks again to Karen Loveys for inviting us, and thanks to Joy for allowing us to take part in the event. We had a great time!

Daniel

Tuesday, March 8, 2011

Get your dancing shoes on

On Saturday, March 12th, 2011 we will be selling raffle tickets for a brand new Xbox 360 at George Preston Arena in Langley, British Columbia, Canada during a St. Patrick’s Dance. We will also be selling 50/50 tickets. All proceeds from the Xbox 360 raffle and half of the 50/50 tickets will benefit the Bubbles Make Him Smile Therapy Fund.

So put on some green, and get your dancing shoes on and join us for this always sold out event!

St. Patrick's Dance

Win a Xbox 360!

The Xbox 360 prize contents:

  • Kinect Ready (sold separately)
  • 250GB Hard Drive
  • Xbox 360 Wireless Controller
  • Composite AV Cable
  • Xbox 360 Headset
  • Internal WiFi Capability
  • One year warranty
  • Valued at $299.99 CDN

Special thanks to Karen Loveys for inviting us to this event to raise autism awareness and funds.